We have 2 Directors who along with another team member form a 3 member Committee who take overall responsibility for the direction of the forum – all of these roles are voluntary and we receive no monetary recompense for the work we do. We have members of staff who have fixed-term zero hours contracts: The Forum Manager, Administrator, Finance Co-ordinator and Participation & Engagement Co-ordinator. We have a team of Parent Representatives and Volunteers who work alongside the Committee. We provide remuneration to all Parent Representatives who attend meetings with the Local Authority, Health and other providers. It is important to us that our team members feel valued and appreciated for the time they spend supporting the work of the forum. As we are now an established Company, we have a recruitment process for any positions that become available. We will advertise via our website, mailing list and social media accounts in the event of any roles becoming available, and invite suitable candidates to an informal interview.
The Committee meets every other month during term time to review our activities.
Chair/Forum Manager/Safeguarding Lead/Director
I joined Swindon SEND Families Voice in June 2019. I am Mum to an 11-year-old with a rare genetic condition resulting in severe physical and mental delays. I am hoping that through this role, I will be able to act as liaisons and voices between the community, parents and carers and professionals to ensure that services are correct and accessible for all that need them.
My name is Nausheen Ali. My own 3 boys have separate SEN needs and I have been dealing with this for the past 13 years. With my experience, I would like to help the SEND community, especially those families whose children need such support. Instead of parents going through this difficult process by themselves, I am aiming to provide support to help them along the way so they don’t feel alone. Part of my role includes reaching out to all corners of the community to encourage participation and engagement of all parents and carers.
I joined Swindon SEND Families Voice in November 2018 as the administrator and have since joined the Committee. I have 2 teenage children, one with special needs and have an involvement in the Learning Disability meetings and event planning such as the Transition to Adulthood Roadshow. In my spare time, I enjoy doing outdoor sports and eating!
Communications Co-ordinator/Parent Representative
I have 3 children and my youngest has a rare brain condition that is more common in cats than it is in humans! I am one of the founder members of our group and I am passionate about all our children having the opportunity to live their best lives and champion inclusiveness. In November 2021 I moved on from being the Chair for Swindon SEND Families Voice to take up the role of Participation Lead for the NNPCF (National Network of Parent Carer Forums) but I still do work for Swindon SEND Families Voice as a Parent Representative and I also do the monthly ebulletin and newsletters. When I am not working, I love travelling, watching motor racing and renovating our house.
I’m Jayde. I’m the mother of 3 children. My middle child has ADHD. I spent years trying to get the right support in place for my son. I joined Swindon SEND Families Voice because I wanted to help make a change to SEN families and to make things better for them.
My name is Amina I have triplets that were born at 23 weeks. This has left two of them as registered disabled, Zayn who has complex needs and Tara who’s diagnosis is ASD, and Layla who is “mainstream“.
I joined Swindon SEND Families Voice in February 2020 as a parent volunteer because I have been through so many scary situations and fights for my kids there have been times I’ve been emotional, I’ve been angry but most of all determined. I have seen so many families go through the same hardships and discrimination that I have and so I want to do my bit to support and help where ever I can. SEN is something I am very passionate about, and will always be.
I’m Mum to two children. My eldest has many needs including autism, anxiety, sensory needs and hypermobility. He is also deeply loving, and full of fun and curiosity! My youngest is awaiting assessment for social communication difficulties. In our spare time, we love spending time together as a family, particularly going out to the woods or the beach.
I previously worked across the early years, education, health and social care/charity sectors for 20 years. Experiencing ‘the system’ as a parent has been eye-opening and we’ve had a long struggle to get my eldest the support he needs. I’m looking forward to being a part of something that helps parents’ voices to be heard and respected, making services better for everyone.
Hi my name is Hannah and I’m a mum to 3 children, 1 is diagnosed with Autism, depression and hearing loss and 1 is diagnosed with ADHD and learning difficulties. I’ve focused the last 15 years on navigating our way through our special needs journey and I’m so happy that I’m in a position now to join this wonderful team and hopefully help other parents/carers and children on their journey.
My name is Stephanie. I have an amazing hubby called Mark and I am a stay at home mum to a six year old son and a 3 year old daughter. When I’m not being mummy or wife, I enjoy dancing, reading and cross stitching.
I’m Carrie and I’m a qualified counsellor as well as being a mum, working for another local charity and being a parent representative here. I like to be busy! I have one child who has been suffering throughout the pandemic. Their mental health has deteriorated so much that they don’t go to school and it’s a good day when they can get out of bed or have a conversation with me. I never imagined I would become a carer in this way and it’s given me an insight into how hard parents have to fight to get proper support so I’m excited to advocate for change on behalf of all SEND parents!
When I do get a bit of free time, I love to cook, read and have a laugh with friends. I also now have a house covered in diamond paintings as that’s my current passion!